A Spider in the Web: Role of the Palliative Care Nurse Specialist in Uganda - An Ethnographic Field Study

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A Spider in the Web: Role of the Palliative Care Nurse Specialist in Uganda - An Ethnographic Field Study

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Publication Article, peer reviewed scientific
Title A Spider in the Web: Role of the Palliative Care Nurse Specialist in Uganda - An Ethnographic Field Study
Author(s) Schaepe, Christiane ; Campbell, Ann-Mari ; Bolmsjö, Ingrid
Date 2011
English abstract
Background: Palliative care is not a priority in developing countries. Hospice Africa Uganda (HAU), where nurses complete a course in clinical palliative care, is considered a model for other African countries. Aim: To explore the role of the palliative care nurse specialist (PCNS) in Uganda. Methods: This ethnographic field study uses observations, interviews, and group interviews. Participants: In total, 20 participants are included in this study. Result: The role of the palliative care nurse specialist is multifaceted. Beyond prescribing drugs, their role is to deliver holistic care. They encounter numerous challenges in their work, but they also have the possibility to improve the quality of the patient’s life.
DOI http://dx.doi.org/10.1177/1049909110397727 (link to publisher's fulltext)
Publisher Sage
Host/Issue American Journal of Hospice and Palliative Medicine;6
Volume 28
ISSN 1049-9091
Pages 403-411
Language eng (iso)
Subject(s) challenges
holistic care
Hospice Africa Uganda
nurses’ role
palliative care
Uganda
Medicine
Research Subject Categories::INTERDISCIPLINARY RESEARCH AREAS
Handle http://hdl.handle.net/2043/13636 (link to this page)

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