Potential adult sibling stem cell donors’ perceptions and opinions regarding an information and care model

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Potential adult sibling stem cell donors’ perceptions and opinions regarding an information and care model

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Publication Article, peer reviewed scientific
Title Potential adult sibling stem cell donors’ perceptions and opinions regarding an information and care model
Author(s) Kisch, Annika ; Lenhoff, Stig ; Bengtsson, Mariette ; Bolmsjö, Ingrid
Date 2013
English abstract
The first international recommendations and guidelines for the care of sibling stem cell donors were established in 2010, and have not yet been evaluated. However, a model for information and care of adult potential sibling stem cell donors (the IC model) developed and introduced at the Skåne University Hospital, Lund, Sweden, in 2005 conforms closely to them. The IC model aims to protect the privacy of potential donors, support and respect their free choice, and identify quickly those unwilling or unable to donate and thus minimize delay in seeking alternative donors. To evaluate the IC model a questionnaire survey in 2010 gathered the perceptions and views on information provision; influences over decision making; and care provision under the IC model of 148 adult siblings informed about SCT donation, and asked to undergo HLA-typing since September 2005 at the hospital. The results suggest the IC model works well but highlights areas for improvement, such as in delivery of HLA typing results to non-matched siblings, and a need to further prevent complicating influence from health professionals and relatives on the decision to undergo HLA typing. Thus improved, the IC model could provide the groundwork for other SCT units seeking to implement the recommendations and guidelines.
DOI http://dx.doi.org/10.1038/bmt.2012.283 (link to publisher's fulltext)
Publisher Nature Publishing Group
Host/Issue Bone Marrow Transplantation;8
Volume 48
ISSN 0268-3369
Pages 1133-1137
Language eng (iso)
Subject(s) potential sibling donors
haematopoietic stem cell donation
information and care model
donor confidentiality
quantitative study
Medicine
Research Subject Categories::MEDICINE
Handle http://hdl.handle.net/2043/15309 (link to this page)

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