Patients Descriptions of Participation in Structured Heart Failure Home Care

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Patients Descriptions of Participation in Structured Heart Failure Home Care

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Publication Other
Title Patients Descriptions of Participation in Structured Heart Failure Home Care
Author(s) Näsström, Lena L ; Idvall, Ewa ; Strömberg, Anna
Date 2012
English abstract
Background: A growing number of patients with heart failure (HF) will need lifelong care and one option is to provide advanced HF care in the patient’s home. A Euro - pean integrated home care model has been developed and tested in the Netherlands and Sweden. The model pro - vides structured home care with the goal that patients will experience participation, safety and have knowledge about their disease and treatment. The aim of this study was to examine how HF patients, who receive a structured home care, describe participation in the care. Method: Swedish HF patients receiving structured home care at four different settings were included in the study. Strategic sampling was used to reach a variation regard - ing severity of HF, different needs of home-care, age and gender. A total of 19 open ended interviews have been con - ducted. The interviews were analyzed with qualitative con - tent analysis, where categories were developed inductively. Results: In the preliminary findings 5 categories with asso - ciated subcategories emerged on how patients with HF described participation in structured home care. To expe - rience room for communication including having room for dialogue and receiving care-related information was described as important for participation. To have accessi - bility to care through planned home visits or patient initi - ated visits facilitated participation. The patients described participation by engaging in self care and to collaborate with the home care team. To have trust in the home care team with confidence for competence and have continu - ity to meet individual needs was of importance. To have options to make decisions was expressed as a will to make decisions or to entrust decisions to the caregiver, but some - times patients opportunity to choose was restricted due to different aspects and impeded participation. Conclusion/significance of the study: The findings describe different aspects of participation among patients with HF who receive structured home care. Home visits facilitated communication between the patient and care - giver and enables participation. Getting information was an important condition for participation that often was met during home visits. Good accessibility to care increased feeling of participation as well as to meet caregivers of whom they trust. Own desire to make choices vary depend - ing on what choice it regards and also between different individuals. However, several patients expressed a complex situation with several health care contacts, where the opportunity for participation was limited.
DOI http://dx.doi.org/10.1177/1474515112441129 (link to publisher's fulltext)
Publisher Sage
Host/Issue The 12th Annual Spring Meeting on Cardiovascular Nursing Copenhagen, Denmark, 16-17 March 2012 Final Programme & Abstract Book;
Series/Issue European Journal of Cardiovascular Nursing;suppl 1
ISSN 1474-5151
Pages S72
Language eng (iso)
Subject(s) Medicine
Research Subject Categories::MEDICINE
Note The 12th Annual Spring Meeting on Cardiovascular Nursing Copenhagen, Denmark, 16-17 March 2012
Handle http://hdl.handle.net/2043/17522 (link to this page)
Link http://www.escardio.org/congresses/cardio-nursing-2012/pages/welcome.aspx (external link to related web page)

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