Characteristics and Quality of Life of Patients Who Choose Home Care at the End of Life

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Publication Article, peer reviewed scientific
Title Characteristics and Quality of Life of Patients Who Choose Home Care at the End of Life
Author(s) Ahlner Elmqvist, Marianne ; Jordhøy, Marit S ; Bjordal, Kristin ; Jannert, Magnus ; Kaasa, Stein
Date 2008
English abstract
Cancer patients with advanced disease and short-survival expectancy were given hospitalbased advanced home care (AHC) or conventional care (CC), according to their preference. The two groups were compared at baseline to investigate whether there were differences between the AHC and the CC patients that may help explain their choice of care. The patients were consecutively recruited over 2½ years. Sociodemographic and medical data, and the health-related quality of life (HRQL) of the two groups were compared. HRQL was assessed using a self-reporting questionnaire, including the European Organization for Research and Treatment of Cancer Core Quality of Life Questionnaire (EORTC QLQC30), the Impact of Event Scale (IES), five questions about social support, and two items concerning general well-being. The AHC group showed significantly poorer functioning on all the EORTC QLQ-C30 scales and an overall higher symptom burden than the CC patients. Fewer of the AHC patients were receiving cancer treatment. The AHC patients had lived longer with their cancer diagnosis, had a significantly shorter survival after study enrollment, and a significantly poorer performance status. The major differences between the two groups seemed to be related to being at different stages in their disease. The results indicate that patients are reluctant to accept home care until absolutely necessary due to severity of functioning impairments and symptom burden. These findings should be taken into consideration in planning palliative care services. J Pain Symptom Manage 2008;36:217e227. 2008 U.S. Cancer Pain Relief Committee. Published by Elsevier Inc. All rights reserved.
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Publisher Elsevier Inc.
Host/Issue Journal of Pain and Symptom Management;3
Volume 36
ISSN 0885-3924
Pages 217-227
Language eng (iso)
Subject(s) advanced home care
health-related quality of life
Research Subject Categories::MEDICINE::Dermatology and venerology, clinical genetics, internal medicine::Internal medicine::Palliative medicine
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